Suggested Resources & Applications
We’ve compiled a list of helpful organizations that provide a variety of resources for people with neuromuscular diseases, including everything from help with medical equipment to vocational services and more.
Muscular Dystrophy Association
The Muscular Dystrophy Association (MDA) provides a variety of services for people with neuromuscular diseases, including paying for medical equipment, allowing the borrowing equipment, and providing medical care through MDA clinics.
Supplemental Security Income
Supplemental Security Income (SSI) gives details on the SSI service, which gives money to people affected by a variety of disabilities, and is an outlet to apply for this service.
Independent Living Resource Center
The Independent Living Resource Center (ILRC) provides many different services for individuals with disabilities. One of their more notable services is allowing friends and family members to be paid through the HCBS program, for providing attendant care for a disabled person.
Vocational Rehabilitation Services
Vocational Rehabilitation Services helps people with a variety of disabilities find jobs, and also helps pay for schooling, computers, and equipment, as well as many other things.
FUSE Retreat Applications
Ready to take part in a FUSE Retreat? We’re expecting this year to be another great experience, and we want you to be included. See below for more information and applications!
IMPORTANT DATES AND INFORMATION:
FUSE RETREAT 2025 – Thursday, July 24 (arrive 1 pm) thru Sunday, July 27th (depart noon), Camp Tawakoni (near Augusta, KS)
Sunday, June 1 — applications open
Tuesday, July 1 — applications DUE (please send as early as you can, as it helps us with our preparations!)
NOTE: You will receive an email acknowledgement of receipt of your application – but not immediately! The response may take up to 5 days. Don’t panic!
IMPORTANT: Your application is considered ACCEPTED unless you are notified otherwise. Space is somewhat limited, though we will do our best to make room for everyone interested. In the event we reach capacity, preference is given according to the date completed applications are received.
QUESTIONS? Contact Gabe Parham, FUSE Retreat Director — 316-393-3131 or Chad Yeager, FUSE Retreat Medical Director — 913-461-8634